I'm a brain surgery survivor for Chiari Malformation, a little known, but widely affecting condition where the brain is too large for the space in
the skull. The brain is often compressed by the skull and extends into the spinal cord. Before and since surgery I have by trying to raise
awareness about Chiari Malformation by educating friends and family and anyone else who will listen. Local media is reluctant to take on "public
interest health issue" stories. Awareness is needed for the debilitating condition which causes massive headaches, trouble thinking, speaking
and seeing, numbness in arms and legs, just to name a few. Surgery is not a cure for the condition, but can help alleviate most symptoms in
80% of patients. Some patients are worse after surgery or even need further surgeries. Awareness is need for this condition in Canada. In the
US there are charitable organizations and even a national walk every September to raise awareness and funding for research. There is nothing
in Canada except support groups on websites like Facebook and Yahoo. Approximately 1 in 10,000 people have this condition, with many going
undiagnosed or misdiagnosed for years. Chiari Malformation is more prominent than cervical cancer and multiple sclerosis, but most people
have never heard of it. Thank you.
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